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Archive for the 'Education' Category

Aug 25 2009

Back to School? Get IEP Help Now!

This week I have been thinking about posting information about the great site Get IEP Help with Yael Cohen. I had the opportunity to talk with Yael a few months back when I stumbled upon her site. So, this evening was going to be the day that I was going to tell you all about Yael and all the great services she provides for parents of children with learning disabilities or delays. I was going to tell you that if your child has an IEP, no matter what the reason, this site and service is something you could not pass up! I was also going to tell you about the teleseminars that she is running FOR FREE and the prizes that she gives away during these calls! I was going to tell you about the articles that are on the site that are extremely helpful for anyone going into an IEP meeting. I also was going to tell you about her blog that she writes with helpful information. 

However, I can’t about all those things, because Yael just sent an action alert from her Facebook page and if you are in America and you have a child with Down syndrome, mosaic Down syndrome, or any learning disability you really should read this….

Legislative Alert - Don’t Water Down IEP Goals

by Yael on August 25, 2009

 

Hi folks,
I’ve watched it happen…we measure how many kids or the speed at which kids meet their goals and circulate it and what occurs? The goals get watered down to avoid repercussions. Not the way we want it to go. Data? Yes. Watering down IEP goals? No.
Please read and use the link to comment.
Yael

 

The U.S. Department of Education (USED) has announced proposed regulations governing the Race to the Top Fund — part of the American Recovery and Reinvestment Act that provides a $4.3 billion competitive grant program to states. The “Race to the Top Fund” is designed to encourage and reward states that are implementing significant education reforms in key areas outlined by the Secretary of Education.

 

The proposed regulations include a variety of ways to measure student achievement that, in turn are used to measure student growth. Rates of student growth will be used to measure principal and teacher effectiveness.

 

The proposed definition of “student achievement” includes the rates at which students meet goals in individualized education programs (IEPs).

 

ACTION ALERT

 

Please take action by submitting the following comments on the Regulations.gov web site regarding the “Race to the Top Fund (Document ID ED-2009-OESE-0006-0001) .”

 

All comments must be submitted to the Regulations.gov web site.

 

Please fill in the required information, cut and paste the below comment into the field provided and click “submit.”

 

Deadline: All comments must be made by Friday, August 28, 2009.

 

Comment:

 

IEP goals should not be used to measure student achievement as part of IV Definitions: Student Achievement.

 

In 2005, USED itself stated “IEP goals are individualized for each student, and a student’s progress toward each goal is measured for purposed of reporting progress to parents for making individualized decisions about the special education and related services a student receives.” “IEP goals may address a broad range of individualized instructional needs, as well as behavioral and developmental needs, and might not be based on the State’s academic content standards. IEP goals may cover a range of issues beyond reading/language arts and mathematics, such as behavior, social skills, or the use of adaptive equipment, and, as such, an examination of how well a student met his or her IEP goals is not synonymous with achievement…”

 

Such inappropriate use of achievement of IEP goals may lead to the unintended consequence of a reduction in rigor, resulting in a lowering of expectations for students with disabilities. Since student achievement is designed to be used to determine student growth and to measure principal and teacher effectiveness, it is particularly important that the use of IEP goals to measure student achievement be deleted from these proposed regulations.

 

Thank you for the opportunity to submit my comment.

 

Sincerely,

 

Your name

 

Thank you for your immediate attention to this alert.

 

Sincerely,
Laura Kaloi
Public Policy Director
National Center for Learning Disabilities

——————————————————————————————-

I’m sorry I couldn’t tell you about Yael and the Get IEP Help site and how great the services are that she provides. If you want information on that, you can visit her site at http://getiephelp.com/

 

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Jun 11 2009

“Building Bridges for Down Syndrome” 4th Biennial Research & Awareness Conference 2009

 

 

As you all know I have been crazy busy planning for our upcoming conference! I wanted to give y’all some important info so you don’t miss out. 

 

First of all, Next Friday, June 19th is the deadline for reserving your hotel room. We got a great room block at the Sheraton Cincinnati North Hotel & Indoor Water Resort. It is only $105 per night and for $12 per person you can enter the water park. You can book your hotel by going to our website. 

 

The conference registration deadline is Friday, June 26. After this, the fees will increase. You can register at our website.

 

Finally, please see below our press release. If you have a blog or an email list, please post this information for others to see. We are very excited to bring this to everyone and we would hate for anyone who would benefit from this conference to miss out!

 

See you in just a couple of weeks in Cincinnati!!

 cole.jpg
Keynote Speaker Congresswoman Cathy McMorris Rogers with husband and newborn son w/DS,  Cole

 

FOR IMMEDIATE RELEASE-June 11, 2009

 

Parents of children with Down syndrome (DS) are universally concerned about the wellbeing of their child’s health, future, and ability to connect with other DS families.  The Down Syndrome Association of Greater Cincinnati (DSAGC) hosts “Building Bridges for Down Syndrome”: the fourth biennial research and awareness conference presented by the International Mosaic Down Syndrome Association (IMDSA).

 

 

 

The term Down syndrome (DS) was named after Dr. Langdon Down, a British doctor who first described the condition in 1887.  This year marks the 50th Anniversary of the discovery of the extra 21st chromosome that causes Down syndrome.  DS is a genetic condition that occurs in one in every eight-hundred (800) births.  There are four types of Down syndrome:  Trisomy-21, Translocation, Mosaic, and Mosaic-Translocation. 

 

 

 

The Down syndrome community has leapt many hurdles in paving the way for future generations, but there is still a lot of work to do.  The attendees of this biennial research and awareness conference are empowered with information, hope for the future of all individuals with DS, and are given the opportunity to participate in various research studies being conducted onsite during the conference.  Teens and adults with DS, along with their siblings, will learn everything from how to manage a budget to relationships and friendships in the “Teen and Adult Conference.”  Children ages 2-12 with DS along with their siblings, will learn a variety of subjects: Acting and Puppetry to Bullying to Stranger Danger in the “Kid Konference.”  Students interested in professional careers pertaining to DS will supervise these youngsters; giving them a better understanding of what DS really means for these individuals.  Together, families and professionals will enjoy the “Friday Night Family Reunion & Silent Auction” with entertainment from The Amazing Portable Circus and self-advocates Sujeet Desai, Tim Colvin, and Casey Morton.

 

 

 

Some attendees of the 2007 conference held in Richmond, VA said, “At the IMDSA’s Conference, there’s a sense of family the moment you step through the doors, everyone is welcoming.  I’ve learned so many things from all the speakers!” 

 

 

 

Join IMDSA and DSAGC Friday, July 10 through Sunday, July 12 at the Sheraton Cincinnati North Hotel and Indoor Water Resort in Sharonville, Ohio for a fully scheduled weekend of information, family fun, socialization, and entertainment by Sujeet Desai, Dan Kulp, Tim Colvin, and Casey Morton.  Over 30 experts will discuss various topics that will beneficial to the betterment of all families of children and adults with DS.  This is a life-span conference with topics pertaining to all ages of people with DS.  Researchers and professionals will also benefit greatly by attending.  There will be many great activities, workshops, and sharing of information.  A sure highlight of the weekend will be the “Family Awards and Celebration Banquet and Dance” with self-advocate Jennifer Katz and comedian/musician Dan Kulp. 

 

 

 

Reservations are filling fast and space is limited, so register and reserve your spot today!  For more information on how to register, visit www.imdsa.org

 

 

 # # #

The International Mosaic Down Syndrome Association (IMDSA) provides support, information, and research to any family, individual, or professional whose life has been affected by mosaic Down syndrome. Its Research & Awareness Conference provides support, information and research to all forms of Down syndrome.

 

Contact:

Kristy Colvin

IMDSA President

Email: president@imdsa.org

Toll free:  1-888-MDS-LINK

Web:  www.imdsa.org

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May 31 2009

Not Another IEP Meeting!!!! Get IEP Help Now!

Sometimes there are some advantages to having A.D.D. I tend to hop from one place to another when I am looking for something online and just like when you go to the store for one thing and come out with a special treasure you never knew even existed, most of the time when I am surfing on the web, I often find a special treasure here and there that I never knew was even there!

Just recently, I happened upon such a treasure and if you are a parent of a child with Down syndrome or Autism or any learning disability or developmental delay, I think you will agree that this is a fantastic find! Over the weekend, I had the opportunity to talk on the phone to the founder of Get IEP Help, Yael Cohen, and we had a great conversation about all that Yael does to help parents understand the whole IEP process.

Yael says,  “When things just aren’t going so well with your child at school, you want to know why, what to do, and how to get it. I have over 30 years experience doing just that. Along with helping parents successfully advocate for their children’s educational needs, I also directly help children with learning challenges to read, spell, and learn other academic skills and strategies. I have a B.A. in Speech Pathology and an M.A. in Special Education, with an extensive background in reading, math, and writing instruction. Parents like you seek me out for my expertise, but also because I can help you not only figure out what will work for your child, but where you find the local resources. I am a true believer that your child deserves a great education. With the right kind of instruction, every child can learn - yours included. In my spare time, I enjoy the gorgeous Colorado mountains. I have adult twin children, who finally(!) sleep through the night, and I live in Boulder, Colorado. I look forward to assisting you and your child.”

She has a great deal of information available at your fingertips on her website  and she offers FREE TELESEMINARS ,(next one this Tuesday!) a FREE PHONE CONSULTATION, several books and products to help you with IEP’s and help you with your child’s learning problems,  and if you need a little extra help, Yael will help you with that Second Opinion . As a professional she can help you with your IEP and take some of the anxiety and tears away!

Consider this….

 

Does your meeting seem like Debra’s in Florida?

 

“I sat in that IEP meeting with my heart throbbing.  There were at least a dozen people, most of whom I had never met, sitting on the other side of the table, telling me about my child’s numbers.  They kept smiling at me while they spoke ― mostly in what sounded like Greek.

“They gave me lots of papers and told me I should sign.  Although they said I’m their partner, I seemed to be the only one who didn’t speak Greek or understand what the numbers meant.   I was still trying to grasp what they said about something being wrong with my child.  They asked me questions, but didn’t ask more about my suggestions or write down what I said.  I thought I knew my child, but suddenly, at that meeting, I felt stupid and left out.”

 

Or , does your IEP meeting seem more like Susan’s, in Colorado?

 

Susan’s son, Doug, was so learning disabled, that in the spring of his first grade year, he could not read anything, not even his name!  He cried in class when the teacher said, “You don’t really need my help!

You can do it if you try.

 

“Nightly, Doug confided to his mom, Susan, that he was clearly the stupidest kid in 1st grade.  Finally, the school agreed to test Doug. Susan was both anxious and excited on the way to the first IEP meeting. She thought that for sure the school would figure out what Doug’ problems were and how to solve them.

 

“Susan was in shock as the meeting unfolded.  The school team used gigantic words that she didn’t understand and kept spewing out numbers that made little sense.  They blamed her for the fact that Doug couldn’t read and even suggested a change in visitation between her and Doug’s dad.  In her gut, little that they said felt right to her. 

 

“Over and over, the staff kept asking Susan to trust them and to sign the forms. But when she asked what they would be doing to help Doug, the answers were again full of foreign-sounding words and numbers. She refused to sign.  Instead, Susan took the paperwork home and tried to do some quick research on the internet, but there was just too much she didn’t understand.  In tears, she called an old friend of hers who had help from an advocate for her child.”

 

Here’s what Susan said afterwards…

 

“It was just what I needed.  Yael, the advocate my friend recommended, explained everything to me in plain English, showed me what the testing meant, and analyzed the IEP (Individual Education Plan) document for me, letting me know which parts made sense and which parts did not.  She asked me questions and offered solutions.

 

She gave me a plan to follow for the next meeting and then convinced the school to use a research-based reading program for Doug.  She helped us to find a dyslexia specialist to help him outside of school.  She is a walking encyclopedia, who gave us so many resources!

 

Over time, Yael has taught us how to advocate effectively for our child.  No longer do I feel stupid in the meetings about my son.  And on top of that, my son now is a avid reader!  I’m really excited she’s offering these online conferences for parents, because all parents of kids with special needs to know the secrets of how to get through!

 

You Don’t Want To Miss This Online Conference: How To Sign Up

Go Now To www.GetIEPHelp.com/spedteleseminars.html and Register for Free Online Seminars for Parents of Kids With Learning Challenges.

 

This week’s online/phone seminar on Tuesday is on How To Break Down Academic (and

Household) Tasks So That Your Child Can Learn How To Do Them.  To sign up for this and other Get IEP Help free online parent seminars, go to:  www.GetIEPHelp.com/spedteleseminars.html

 

When you get the conference info, you’ll also get a link to the last online conference Yael did, which is free online for just a few more days.  You’ll also have an opportunity to ask a question for this conference.

 

What Else You Can Discover:

You might want to check out Yael’s other services while you’re on www.GetIEPHelp.com   She offers a whole “Get IEP Help System” which helps you do it yourself, 2nd Opinions on your upcoming or last IEP,

and even a super online reading program for beginning or struggling readers.

 

Folks, it doesn’t have to be that bad – check it out today!

 

 

 Please check out Yael’s website by clicking here.

 

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Mar 29 2009

Youth with Down syndrome & mosaic Down syndrome

On July 10-12 the Down Syndrome Association of Greater Cincinnati will host IMDSA’s Down Syndrome Research & Awareness Conference . This is actually 5 conferences in one.

 

  1. Families and Individuals  participate in research with various Down syndrome researchers (by appointment)
  2. Down Syndrome Association Board Members workshop allows DSA board members to network and learn more to help run their DSA’s.
  3. Research & Awareness Conference allows families and professionals the opportunity to learn from over 30 experts in the Down syndrome field through 4 ongoing breakout sessions throughout the weekend.
  4. Children ages 2-12 (sibs included) have fun at Kid Konference while students get hands on experience to enhance their careers.
  5. Teens ages 13-adult (sibs included) enjoy themselves while learning great things at the Youth Conference

With our early registration deadline quickly approaching on March 31st I want to be sure that I tell you as much as I possibly can concerning the conferences.

Many have asked about the Youth Conference. This is for ages 13-adult and siblings are included and will also learn and have fun!

We have broke this into three themed tracts and youth can choose which workshops they wish to attend. We are still working on the finalization of this conference schedule, but to give you a general idea of the topics we are looking to be addressed, here are just a few of them:

Tract 1 Recreation and Leisure:

  • Social Networking
  • Acting and Movement
  • Sports - Special Olympics
  • Yoga
  • Karate

Tract 2 Planning for the Future:

  • Independent Planning
  • Self-Advocacy
  • Leadership opportunities
  • Transitioning to College
  • Money Management

Tract 3 Personal Living:

  • Self Defense and Community Safety
  • Special Friends Online
  • Relationships
  • Music and Singing
  • Jobs & Careers
  • Hygiene and Personal Care

The folks at Starfire U have been fantastic at planning this Youth Conference for us! I am very excited about all the possibilities for our Youth Conference this year and from past experiences, the youth who attend our conference not only learn very valuable information to help them with their lives, they also form lasting friendships that carry over far after this conference has ended!

To find out more information about the Down Syndrome Research & Awareness Conference and how to get financial assistance to attend, please click here to visit our website.

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Mar 28 2009

Children’s Conference for Down Syndrome Research & Awareness Conference

Many people have asked about what they can do with their children during the Down Syndrome Research & Awareness Conference in Cincinnati in July. International Mosaic Down Syndrome Association holds a very special Kid Konference for children ages 2-12 and Youth Conference for ages 13-adult.

 

When we first began our conferences back in 2004, we saw two needs that needed to be filled.

 

First, our parents and family members needed to be able to listen to workshop presenters, and ask questions that are sometimes difficult and uncomfortable in front of children. These families needed to be able to relax and not worry about what their children were doing and that they were safe. And, the children didn’t need to be bored during these hours the parents were away.

 

The second need that we saw was that geneticists, teachers, nurses, doctors and therapists were learning only the basics in their schooling about Down syndrome and very few had even heard about mosaic Down syndrome. These students were only learning what their books told them and they didn’t have a real perspective on what it truly meant to have extra chromosomes for the family and for the individual.

 

So, we combined these needs and developed our Kid Konference. Children ages 2-12 with Down syndrome, mosaic Down syndrome and their siblings are divided into three age groups. 2-5, 6-9 and 10-12. Within these groups, we invite students who are learning in a field that will put them in places where children with Down syndrome and mosaic Down syndrome will be. We do background checks on each student to ensure the children’s safety and the students supervise the children on Saturday and Sunday during their workshops. This enables students to learn what it really means to have Down syndrome or mosaic Down syndrome and gives them hands on experience with the children. Every student who attends this program also is allowed to attend the workshops of their choice to further enhance their careers and each receive a certificate of participation at the end of the conference. Every student who has attended this program has said that it has truly changed their lives and it is something that they will always remember.

 

Currently, we are still working on finalizing this schedule for our Kid Konference and each presentation will be geared towards the age group. But to give you a good idea about what is in store for the children, we are planning on the following topics:

  • Music Therapy & Fun
  • Art Lesson (will be displayed at banquet)
  • Yoga for Kids
  • Karate Moves for Fun
  • Sports
  • Everyone Can Cook
  • What to do about Strangers
  • How to deal with Bullies
  • Tumble Bus
  • Magician
  • Clown
  • Coloring with Coco the Bird (The Coco Keys Water Resort Mascot)

I hope this gives you a good idea about the Kid Konference! The cost is only $10 per child and this includes 2 snacks on Saturday and 1 snack on Sunday. 

Early Registration ends on Tuesday, March 31st!  After this prices for the main conference will go up. For more information on this and how to register, click here.

Tomorrow I will give you a little insight on what to expect for the Youth Conference!

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Mar 24 2009

One Week Left For Early Registration!

 

 

It is hard to believe that we have been planning for our Down Syndrome Research & Awareness Conference  for ten months now! No wonder I am so tired! :)

On April 1, 2009, the conference registration prices will go up. Not considerably so, but this is our early registration deadline and the price will change. 

Many ask, how much it cost to attend the conference.  Well, it depends on how many you have coming with you!

If you register before March 31 and you are a member of IMDSA, the registration for the main conference is less expensive than those who are not members. However, you can become a member for only $25 and this will give you a free subscription to our quarterly newsletter MOSAIC WORLD that is packed with information pertaining to not only mosaic Down syndrome but also Down syndrome. These articles are all very helpful in raising your child no matter how old or young they are. You also will receive discounts such as this and our information packet full of info and inspiration. If you wish to become a member, even for the discount, that is ok with us! You can click here for more details. 

 

Non Member Early Bird

Member Early Bird

Non Member after 31 March 2009

Member after 31 March 2009

Family Registration

$125

$75

$135

$85

Individual Registration

$85

$50

$95

$60

Conferences

Banquet

(4 & Under Free)

Kid Konference
(2 - 12)

$10

Adults

$30

Youth Conference
(13 - Adult)

$20

Children
(5 - 12)

$12

 

To register, click here for details.

 

We realize that many people are struggling right now to make ends meet and we want more than anything for you to be able to attend this conference! We are, doing all we can to help make it as easy and affordable as possible.  To make this easier, we have compiled a list of possible organizations that may help you attend the conference. Don’t be shy about this! Many organizations have funds set aside to help you attend conferences such as ours! So, please utilize this list!

 

IMDSA is offering two (2) conference scholarships to IMDSA members. Please click here for more details.

 

DSAGC is offering scholarships to families in their immediate area to attend this conference. Please click here for more details.

 

There are many organizations that have funds set aside to help families like yours attend conferences that will enhance your parenting to your child with special needs. If you live within the United States of America please click these agencies below and ask them if they have financial assistance available to help your family attend this conference.

 

Down Syndrome Associations

The Lion’s Club

The ARC

United Way

Developmental Disabilities Council

Yellow Pages for Kids

 

If you live outside of the United States and have a current VISA or Passport contact the following organizations and ask them if they have financial assistance available to help your family attend this conference.

 

Down Syndrome Associations

The Lion’s Club

United Way

 

If you have not yet seen our presenter list you can click here for that.

 

I am very excited about our upcoming conference and I do hope that I can meet all of you there! If you have any questions, just ask!

 

 

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Mar 12 2009

Presenter List

 

Yesterday I tried to give you our presenter list for our Down Syndrome Research & Awareness Conference. Unfortunately, it just was not working out for me! Finally, I have held my mouth right apparently because this time it worked! Below is our list of our presenters for the Main Conference which will be on July 11-12. This does not include July 10 with our research appointments, Family Reunion, and Silent Auction. However, on that same day we are having a workshop for all DSA Board Members to share ideas and currently we are working on that and would be very interested in hearing ideas from DSA Board Members on what they need the most. This also does not include the list for our Youth Conference or Kid Konference. Hopefully we will have that soon. 

As you look at this list, you will see that we very carefully planned for this conference to ensure that most every topic pertaining to Down syndrome no matter what age, is discussed. If you need financial assistance, please email Becky@imdsa.org and she will be happy to help you!

Early Registration deadline is March 31st (after that the price will go up) So, if you haven’t yet registered please go here and you can get even more details and reserve your hotel as well.

 

                                  Speaker                                                       Topic

Congresswoman Cathy McMorris Rogers
Congressional Down Syndrome Caucus
Connor Gifford America According to Connor Gifford
Sara Rosenfeld-Johnson Improving Your Child’s Speech Clarity
Dr. Ashleigh Malloy Inclusion: Weaving the Ties that Bind
Nina Fuller Principles for Life-Spiritual Encouragement
Dr. Colleen Jackson-Cook Explaining Mosaic Down Syndrome
Cathy Heizman Effective Advocacy for Your Child
Cathy Wesley Adapting Curriculum for All Learners
Dr. John Perentesis Leukemia: Genetics, biology and therapy
Dr. James MacDonald Communication for the verbal & non-verbal
Jennifer Bekins & Shelley Mauk Apraxia: Tools & Techniques
Dr. George Capone Neurobehavioral Disorders
Dr. Stephanie Sherman Know Your Heart: Emory DS Research
Joan Dostal Making Sense of Sensory Processing Disorder
Mary Anne Ehlert Future Care Planning
Dr. Warren Zigman Alzheimer’s Disease: What it means for Ds
Marcia Philipps Creating a Vision for Your Child
Jennifer Radt Transitioning to College
Dr. Melissa Rowe How Adults with Ds Learn
Krista Clinebell Socialism & Self-Esteem for the teen/adult
Ann Anzalone Movement, Reflexes & Learning
Dr. Scott Osterfeld Social & Sexual Relationships
Dr. Sally Shott & Dr. Phillip Mattheis NEW Ds Healthcare Guidelines
Cynthia Jones Including Your Child in the IEP
Dr. Sindoor Desai Sujeet’s Story: Beyond the Disability
Sally LaCross Motor Development
Ken & Val Gray Academic Program for Special Needs
Dr. Randall Roper Using Mouse Models for Ds Research
Dr. Phillip Mattheis,Gretchen Carroll, Jennifer Bekins Behavior in Children w/DS
Margo Izzo Best Practices in Adult Transition
Linda Kane Neurodevelopmental Approach
Dan Kulp Growing up w/4 sibs with Ds & adopting
Ted & Jennifer Katz Inspirational message living with
mosaic Down syndrome
OPEN DISCUSSION: DSA Board Sharing
Change Transition for the Future
Research Round Table

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Mar 09 2009

Totally Words: By Love and Learning

Today I am taking a “commercial break” from telling you about the great speakers who will be at the Down Syndrome Research & Awareness Conference in Cincinnati in July. I know that a lot of you received brochures about that in the mail today and if you didn’t you might get one sometime this week if you are on our mailing list. If not, just let me know and we will try to get one to you!

The reason for my “commercial break” today is because I need to tell you about a GREAT program that is FREE!!!

Most everyone knows about Love and Learning and what a great program that is for children with Down syndrome and other learning abilities.  Joe and Susan have just launched a new program that is super cool and lots of fun for kids!

Totally Words  is a computer program that will help your child learn to read and match and answer questions. 

tw1_video_pic5.PNG

Totally Words #1 Computer Program 

- Keeps track and adjusts according to a _child’s progress.
- Teaches over 830 words which are used _over 12,000 times
- Contains 360 Definitions/Clues
- Allows a child to regulate the amount of _assistance needed.
- Individual words in sentences and
_definitions can be “rolled over” with the _mouse for pronunciation.
- Contains 100 word puzzles and 120 _mystery pictures
- Free Trial Version Download

If this version is too advanced for your child, they have several other programs for Beginners and Intermediate learners.

Picture Word Matching for Beginners

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Totally Words Word Matching for Beginners

tw_match_d.PNG

 Totally Words Rhyming for Intermediate Learners

tw_rhym1.PNG

 

They are offering a Free Trial Download for you to check it out and see how it works.  All you have to do is answer a few easy questions about your child’s learning and they will set you up with the program that is right for you! I gave Totally Words a try and I was even having fun with the game!

2 responses so far

Mar 07 2009

Calling All Parents of Adults with Down syndrome

 

red-school-house.jpeg

 

I think maybe I have touched on this topic just a little bit a couple of days ago, however now that we are really going forward with this idea, I want to get as many parents involved as possible!

If you have a teenager or adult with Down syndrome, mosaic Down syndrome or any other special need for that matter, WE NEED TO TALK!

As a parent of an adult son with mosaic Down syndrome, I learned the hard way how broken our transition system is in America for those with any disability or special need. Like the parents before us who pioneered together to allow our children in public schools, we need to come together to make changes, real changes, to the transition system that is currently not working.

Some of the changes that need to be made have already been discussed with many parents I have spoken with. We need a system that works, so when a teenager or adult with Down syndrome (or any special need) finishes High School they actually have a real job or real college placement that will help them with a real career. We need a better system for independent living and real future planning! We need something that helps parents to transition too! As parents of children with special needs, all our children’s lives we have devoted ourselves to their care. We have a great support system in place. We have books and seminars and an outline to follow that tells us step by step what the best thing to do for our child is. Then, all of the sudden, our child is no longer a child and parents often feel lost and very alone. Many parents have said it was like getting the diagnosis all over again!

During our Research & Awareness Conference in Cincinnati Ohio in July , we will have a workshop where we can discuss all of these problems and together we can begin to find solutions! We will move forward with Dr. Libby Kumin’s research project that will tremendously help with the job placement problem and we will develop a committee that will be part of this pioneering event! 

This may not make huge changes for the parents of adult children with Down syndrome, but it will make a tremendous difference for those children of our future!

If you are interested in participating in this project, please leave a comment and include your email address in your registration to leave the comment and I will email you, so we can talk about the possibilities!

Together, we CAN change the world, but we have to really want to change it!

4 responses so far

Feb 23 2009

Ann Anzalone: The Brain Gym


When we began looking at speakers for our 2009 Research & Awareness Conference we knew that we wanted a very balanced conference with a variety of workshops that would be relevant to Down syndrome no matter what age the parent’s child was. We have  a team of planners for this conference and each one has brought a very special touch to the conference, so that no area is left out.

ann1jpg.jpeg

In looking at our choices in presenters, one that we all got very excited about was Ann Anzalone. She has over  25 years experience in helping families and schools with children with special learning problems from K-12.

She serves as a consultant for adult students, parents and their children regarding learning styles, educational plans and academic performance and she provides foster parent training for Montgomery County Children’s Services.

Prior to being an in-service presenter, Ann taught middle and junior high school students, including those with learning disabilities. Ann has been honored as an Outstanding Elementary Teacher of America and was listed in the Who’s Who in American Education.

Ann is a teacher’s teacher, specializing in communication skills, community building, learning styles, cooperative learning, study skills and stress management. She is an energetic and enthusiastic presenter. Her presentations are very practical and focus on the development of techniques, strategies and tools to optimize learning and communication skills.

She has a wide variety of topics she presents on that focuses on specific learning problems. Then, we began looking at what others said about her. The comments got us excited!

One person said,Ann Anzalone was outstanding. My experiences as a parent have touched on so many of the things she talks about but I received the information from half a dozen different professionals over the course of years. It stayed somewhat disjointed in my mind. She ties it all together.

This made us think…. Wow! This sounds like a good presenter for the conference!

Then another person said, “This class was not only enjoyable and entertaining, but I was learning and laughing at the same time.”

This got our attention! We like to laugh! We NEED to laugh! And we love to have presenters who can teach and entertain at the same time!

Then the next person said, “Thank You!   Your presentation was absolutely fascinating. Can’t stop thinking about it.

I told our conference coordinator, Brandy Hellard that this person sounded like an exciting addition to our conference!

Then another comment we read said..”The session was not only relevant in helping me develop professionally but as a person.”

This was our final clincher! We needed to talk with Ann Anzalone!

We did and got excited immediately! Ann’s topic will be Movement, Reflexes and Learning. Ann says, “In my workshop I will explain how learning is not all in your head. Movement is a key factor in the learning process. Learn how learning affects reading, writing and thinking skills. Discover how breathing affects attention. Identify the key reflexes that begin the brain’s organization for academic work and how they impact the learning process. Understand the learning process in laterelization in learning. Improve memory, concentration and thinking skills through exercises designed to structure the connections in the brain for academic learning.” 

To visit Ann’s site you can click here.

We are excited about Ann and all the Down syndrome experts who are presenting at our Research & Awareness Conference! If you have not yet registered, you can do so today by visiting our website here to find out all the information!

For some books that Ann recommends for helping with brain development please read and click below.

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