MOSAIC MOMENTS

I have said many times that Family isn’t just who you are born into, it is who you meet along the way. Family is someone who you share with, you laugh with, you celebrate with, and you cry with. Family is someone you can lean on when you need a shoulder, and someone you know you can depend upon to be there with you for not only your happy moments, but also the most devastating.

I am fortunate to have a family of 1000+ through International Mosaic Down Syndrome Association as well as the entire Down syndrome and mosaic Down syndrome community.

Last October, I told you about one of our family members, Gideon,  in my 31 for 21 series. Gideon was born with mosaic Down syndrome. You can read that story here. 

We all fell in love with Gideon and his infectious laughter and sparkling eyes! Our family began following Gideon and his milestones through the Youtube channel his mom, Marriah, set up to chronicle his life.  You can see all these videos by clicking here.

Then, in March, Gideon took his first steps and there was a shout of triumph throughout the world among our family because like all families, we rejoice with every step, no matter how big or small. You can read more about that here

Just weeks after Gideon’s first steps, he was admitted into the hospital with heart and lung complications. Gideon’s heart problems were more complicated than typical heart problems associated with Down syndrome. He had several heart surgeries, but continued to struggle.  You can read more about that here.

Since this time we have all been holding our breath and saying our prayers for Gideon and his mom Marriah.  Gideon has had quite a battle in his two years of life. And although a Mighty Warrior, Gideon decided that he was through fighting this battle. 

Together, our family is grieving the loss of our mighty warrior, Gideon. On Oct 7,2009, sweet little Gideon got his angel wings. As a family, we are all grieving. Not for Gideon as much as for Marriah. God has a plan that sometimes there is just no way for us to understand. I am glad that we had Gideon to show us what mattered most in the world, if only for 2 years. For such a tiny little warrior, he had the power to make a difference in hundreds of lives and we are better people for have knowing him. 

Our thoughts and prayers are with Marriah and the rest of their family. We are hoping to set up a donation fund for them, so you can help Marriah with expenses. I will be posting that as soon as it is available. 

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