Mar 25 2009
What Was Your Biggest Concern For Your Child?
I am sure you all are tired of hearing me talk about our upcoming Down Syndrome Research & Awareness Conference. Well, maybe you aren’t… maybe you are actually learning something from it and maybe you are getting excited about it and are planning to come! I hope to be able to meet as many people as possible there! We always have a great time and the worst part of the whole weekend is leaving on Sunday!
So, today I am going to switch gears a little bit. I have a question that I want to raise to all the parents who have a child with any form of Down syndrome.
When Tim was first diagnosed with mosaic Down syndrome, my main concern was that people would think differently of him. That he wouldn’t make friends. That people wouldn’t like him. I worried that others would see his mosaic Down syndrome before they saw him.
When your child was first diagnosed, what was your biggest concern? What did you worry about? Was there something specific? Or was it a number of things?
Please leave a comment and share your story with everyone about your biggest concern.
4 Responses to “What Was Your Biggest Concern For Your Child?”
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I worried about me! Sounds selfish, I know. I worried that I’d never smile again and that my life would be as miserable in my parenthood as it was in my childhood. The good news is I smile a lot, parenthood is a wonderful journey and I’m growing a lot. My worries had more to do with own issues, not my daughter having DS. I suspect that’s true for many new parents.
I have something I believe that could help with this, but it’s a phone conversation waiting to happen, so… because I can’t speak for my parents. They aren’t involved — and I’m going to try to get them.
I can only speak for me.
“HEALTH” The rest I thought I could deal with. “WRONG”. I had a nervous breakdown. The best was yet to come even though My Ego was badly bruised. Here I am 70 the little guy is 31 and the Big Guy is 36. The little guy does contract work, and the Big Guy is a licensed Electrician. You might just say I’m as proud as a Peacock. I really feel that there is nobody that can deal with Down Syndrome right off the hop whether it be Mosaic or Trisomy. You can give it what ever title suits you. In My eyes it’s Down Syndrome. We have a rascal in Paul’s Karate Class that has a Cell Phone, and knows how to use it. BTW the Big Guy Erik has a daughter that just turned 4 going on 75, they should make a movie about Her and give Her a starring role.