MOSAIC MOMENTS

We have just four more weeks until World Down Syndrome Day! On World Down Syndrome Day we will be celebrating with our 4th annual Genes Day. We currently have 15 teams raising money and awareness for Down syndrome and mosaic Down syndrome. 

The teams are all doing great and together they have raised $451.00 so far! Zoe’s team is still in the lead and all of her team members are rallying around her and spreading awareness everywhere they go!

Way to go Team Zoe!

If you have not yet made a team, it is not too late! Just go to our site and start making your page! It is very easy and a lot of fun! Click here to learn more about Genes Day.

It is so great that everyone is having such a good time with this event. Families and friends are coming together and really discussing what it really means to have extra chromosomes. They are understanding that having Down syndrome and mosaic Down syndrome is not as different as they once thought. They are understanding that with a little extra help, these kids can grow up to be fantastic adults who are just like everyone else!

Speaking of adults growing up to be fantastic people…..

Earlier in the week, I told you that Dr. Sindoor Desai will be coming to present a workshop at our Down Syndrome Research & Awareness Conference. 

Many wanted to know if her son, Sujeet was planning to attend as well. Sujeet was able to arrange his schedule and will be attending the conference with his parents. We are very happy and excited that he will be able to attend and we are working a possible performance for him. If we are able to work it out, I will give you an update and let you know. But as for now, he and his mom will be presenting a workshop on Saturday morning and he will be playing some during the workshop. If you have never heard Sujeet play, you are in for a treat! The Desai story is truly inspirational and Sujeet is an amazing musician.

You can learn more about Sujeet by visiting his website. www.sujeet.com

Trackback URI | Comments RSS