Nov 17 2008
Do you have a sibling with Down syndrome?
Ashley Noack is a Genetic Counseling student from the University of South Carolina. She has a sister with Down syndrome and she is interested in the prenatal testing and decision making process of individuals who have a sibling with Down syndrome. Specifically she wants to know if having a sibling with Down syndrome affects a woman’s choice to utilize prenatal screening, prenatal diagnosis, and ending a pregnancy for Down syndrome in comparison to women who do not have an affected sibling.
Her hypothesis is that women who have a sibling with Down syndrome will be more likely that the average woman to use prenatal screening and diagnosis but will be less likely to end the pregnancy due to a diagnosis of Down syndrome.
To do this study, she needs to find women who have a sibling with Down syndrome and are over the age of 18. She does not need any identifying information; the survey is anonymous. If you or someone you know fits into this category, and has an interest in the study, they can click here to complete the survey.
Ashley will provide IMDSA with the results of the study when she finishes next summer.
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5 Responses to “Do you have a sibling with Down syndrome?”
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The link isn’t working, Kristy. Can you revise?
Yeah, not working. There are spaces in the link where there shouldn’t be, but even after I fixed them it didn’t work.
Here is the correct address htp://www.surveymonkey.com/s.aspx?sm=I0xV05HGqnL_2f17kPG_2feqmw_3d_3d or http://tinyurl.com/5olku7
Sorry about the link problem. Thanks to Lisie’s mom I have taken that link and fixed it in the article.