I know that many parents of young children with Down syndrome or mosaic Down syndrome worry so much about what the future holds for their child. They worry about all the problems that having a child with Down syndrome or mosaic Down syndrome will have. They worry about what will happen when their child goes to school. They worry about their relationships as teens and adults. They worry about everything! And, they think that if their child didn’t have Down syndrome or mosaic Down syndrome, they wouldn’t have all these problems and everything would be alright.
This couldn’t be further from the truth. No matter if your child has Down syndrome, mosaic Down syndrome or Normal syndrome, you child is going to have PROBLEMS!
My youngest son, Garrett (the “normal” one) began 7th grade this week. It is hard for me to wrap my mind around my baby boy being in 7th grade. However, he is making sure that I KNOW he IS in 7th grade and with that comes all the hormones of pre-teens and ALL the drama.
Last night, we had a dramatic hour of “I need more freedom” This began after I wouldn’t purchase a song online for him that had ‘expicit’ lyrics. Yes, he knows all those words and Yes, he uses most of them when I am not present. However, that doesn’t mean that I have to agree to it!
And, because we are in our “pre-teen stage” this turned to I want to stay up later at night, I want to dye my hair black, I want to run all around town with my friends, why can’t I hang out with the SATANIC kids, I want to stay out as much as I want and I DON’T WANT TO DO CHORES!
This all happened in the course of an hour….well, really two hours because he said all this from 8-9 and then he took a 15 minute break while I talked to his dad on the phone and then started again when I put him in bed.
Each time he said he wanted more freedom and wanted to stay up later his eyes would droop just a little bit more. Finally, at 10pm I pointed out that his eyes were closed and he opened them slightly to prove that he was not tired.
I remind Garrett that his brothers went to bed at 8:30 when they were his age. He goes to bed at 9. He asked for 9:15 and I agreed to that, but now, he is asking for 9:30 and trying to push it to 10
Every child has their own internal clock and needs different amounts of sleep. Garrett obviously needs a little bit more because I think this is his main problem and why we were having so much drama in the first place. He is tired!
Then, the conversation went back to the music with the ‘explicit’ lyrics. He wanted that song and now, because I said no, he will want that song all the more! I know that I will hear about this song for the next month only because I said no.
Gone are the days when he accepted ‘no’ at face value!
Then, the conversation turned back to “Why can’t I hang out with the Satanic kids?”
We are a Christian family. In our belief, we do not ‘hang out’ with those who worship Satan. And, I firmly believe that children and teens will be influenced by their peers no matter how many times we teach them to “Just say No”.
Garrett tried to disagree with me until I gave him this fact…
I reminded him that two years ago he was very upset by his peers and the foul language they were using. He swore he would never use these words because he knew that it did not honor God. He knew that others would look down on him if he used these words. He knew that adults would not respect him and that they would lump him in the group of “bad teens” if he used these words. He knew all these things and said that he would never use bad words.
Of course, I knew better….
So, I reminded him of that when he told me that he wouldn’t be influenced by the ’satanic kids’ and he was capable of making good choices.
He immediately got quiet when I reminded him that he did give into peer pressure on a topic he felt strongly about. He didn’t ask any more about those kids and why he couldn’t hang out with them.
I pray he makes good choices.
Sometimes, as a parent, it is hard to not give in. Kids KNOW how to pull at your heart strings. They KNOW what will make you feel guilty. And, EVERY SINGLE KID IN THE WORLD says, “Everyone else gets to do it but me!”
That makes you second guess your parenting skills most of the time. Fortunately, I have been a parent for 26 years. I have heard it all! And, I have said it all when I was a teen.
It still pulls at my heart. There is always going to be that second where my heart skips a beat and I question if I am doing right by my son. But then, I come to my senses and remember that I am the parent. I am the decision maker. He, at 12 years old, is incapable of making major decisions that will affect his welfare. And, as a parent, it is my responsibility to make sure he is safe.
Many parents feel that once their child reaches this age, they should give them more freedom. And, I do agree to a point. Children have to learn from their mistakes and they have to learn how to handle situations on their own. However, some parents find it “just easier” to let their children do whatever they want and all the sudden, at the most important moment in their life, they have no guidance from their parents and usually make bad choices that are often life-altering.
Finally, with Garrett falling asleep quickly after all his drama, Tim (the one with mosaic Down syndrome) came into the living room where I was working.
He said, “I don’t think I ever gave you that kind of drama when I was his age!”
He is right…. he didn’t!
Yes, we had problems, Yes, we had discussions on what is right and what is wrong. And, Yes, he was grounded so many times that I couldn’t even begin to count!
But, I have to say that out of FIVE boys, Tim was my easiest teenager. We didn’t have the drama that we had with the other boys. Tim is very calm (most of the time) and rarely argued for hours on end about ‘needing more freedom’.
So…. when you worry about your child with Down syndrome or mosaic Down syndrome and think that if only they didn’t have these extra chromosomes everything would be ok… Think again… having children, no matter what, comes with dilemmas, decisions, discussions, discipline and plenty of DRAMA!
Thank God Garrett is my last one to get through these teenage years…. I don’t think I have the strength for any more after this one!